GOSH Day -5

William is doing well and is in good spirits.  Hes enjoying playing his drumsticks on anything that makes a loud noise!

It was very emotional for William and Grace to part on Friday, but thankfully to Skype they can see each other every day :-)

William has started a number of different drugs (pre conditioning) which help protect his lungs, kidneys, liver  etc from the Chemotherapy.  Its making him quite sleepy but appears to be coping amazingly well for a little boy who is quite unaware of what is going on!

The first dose of Chemo will start today and he will receive two different drugs 3 times a day for 4 days before Graces Bone Marrow is harvested on Friday 20th.

Thanks again for all your wonderful messages.
Love
The Sainsburys

The Countdown!

The Countdown!

William was admitted to Gosh on Tuesday 3^rd for his Hickman Line and Peg line to be fitted on Wednesday 4^th.  The operation went well, and they also removed his old Port line and gave him a CT scan to make sure the Shunt was working well and not blocked.

William was very sore for a couple of days after his operation but is now back home and recovering well.  Playing his new drum kit he got for Christmas!!!

We have another visit to GOSH on Tuesday 10^th for Grace and William to have further blood tests pre transplant, then its home for our last couple of days as a family.

 William will be admitted on 13^th January and the Chemotherapy will begin on Sunday 15^th for 4 days 3 times a day.

We met with many Doctors, Nurses and therapists that will be part of a large team helping William and Grace though to process.  We actually stayed in the transplant room that will be home for the next couple of months.

Thank you again for all your wonderful messages of support.  We will update the Blog every few days once we are admitted so you can stay up-to-date with his progress.

Love from

The Sainsburys

xxx